Category: Stories Read More » Every Mile Matters: Why Adam Spisak is Running the 2026 Pittsburgh Marathon for Emily Before Adam Spisak committed to running his first marathon for the NF community, he made an even bigger commitment, to be a father who shows … Read More » Tell Us Your Story: The Parr Family Finding Clarity in the Fight: The Parr Family’s Journey with NF When Sean Parr talks about his son James, one thing is immediately clear: joy comes … Read More » Tell Us Your Story: Danielle Grover Finding Hope, Community, and Purpose on an NF Journey Parenting a child with NF often means learning an entirely new language overnight, navigating specialist visits, …
