Archives:
Tell Us Your Story: Sahil and Shilp Shah Founders of SketchNF
Early Experiences: Two Brothers, One Diagnosis, and the Beginning of a Shared Mission Sahil and Shilp Shah grew up together in Utah in a close-knit …
NF Awareness in Action Event Recap
Building Awareness Through Community: NFX’s Inaugural NF Event On May 17, 2026, in honor of World NF1 Awareness Day, NFX hosted its inaugural NF Awareness …
Tell Us Your Story: Shaun and Tyler Neppl
A story of courage, community, and the powerful bond between a father and son navigating life with NF1. For Shaun Neppl, his son Tyler’s NF1 …
NFX’s First Ever Community Outing
Strike Out NF: Roaring Start to NF Awareness Month On May 1st NFX kicked off NF Awareness Month by bring together members of Metro-Detroit’s’ NF …
Every Mile Matters: Why Adam Spisak is Running the 2026 Pittsburgh Marathon for Emily
Before Adam Spisak committed to running his first marathon for the NF community, he made an even bigger commitment, to be a father who shows …
Tell Us Your Story: The Parr Family
Finding Clarity in the Fight: The Parr Family’s Journey with NF When Sean Parr talks about his son James, one thing is immediately clear: joy comes …
Tell Us Your Story: Danielle Grover
Finding Hope, Community, and Purpose on an NF Journey Parenting a child with NF often means learning an entirely new language overnight, navigating specialist visits, …