Past beNeFits

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Thank you for supporting beNeFit XIII! Your support, both this year and over the last 13 years, has helped us to journey down a path in pursuit of a new future for NF1 research and the lives of all NF patients.  
On Saturday, November 22, more than 1,700 guests gathered for A Black and White Night to Cure NF Night celebration in Downtown Detroit, united by one bold goal: to stop NF in its tracks. 
Together, we raised nearly $87 million to advance NF research through the work being completed by NFX and the Children’s Tumor Foundation. Your generosity continues to drive bold, high-impact research that brings us closer to a future where every person with NF has access to treatments tailored to their unique experience of the disease.

Our rebranding as NFX reflects this new chapter, one defined by determination, discovery, and a sharper focus on solving the unknown variables of NF1. Through strategic, patient-centered investments, we’re turning complexity into clarity and possibility into progress.  

We invite you to watch our short film, The X-Factor, which highlights how collaboration remains a critical “X-factor” in unraveling the mysteries of NF1. You may also enjoy our full beNeFit XIII - Recap video so that you may relive this remarkable evening or share it with those who couldn’t be there.   
Our Strength & Honoree, Harper Grace Durham, share a unique connection this years Head & Heart Honoree, Dr. David H. Gutmann, Dr. Gutmann is Harper’s physician. Their close relationship made this recognition even more powerful.
We were proud to honor Dr. Gutmann for his groundbreaking research and unwavering dedication to advancing effective treatments for NF1. As both a clinician and scientist, he embodies the spirit of the Head & Heart Award, pairing innovative discoveries with compassionate care.

Harper’s courage, resilience, and optimism remind us why this mission matters most. Together, they beautifully represent the heart of our work where visionary science meets extraordinary strength. 

 

Strength & Honor

Harper Grace

Harper Grace was born and raised in Chesterfield, MO. Diagnosed with NF1 at just 19 months old, Harper has faced extraordinary challenges with courage and resilience. Despite these hurdles, Harper is a true fighter. She attends occupational, physical, and speech therapies every week, works with a reading specialist daily, and pushes herself to build strength and endurance. When she’s not busy being a superhero, Harper embraces life with joy and passion. She loves dancing, singing, swimming, and finding creative ways to give back to her community.
Watch Here

Head & Heart

Dr. David H. Gutmann

David H. Gutmann obtained his undergraduate, graduate (PhD) and medical (MD) degrees from the University of Michigan, his residency training in Neurology at the University of Pennsylvania, and research fellowship training in Human Genetics with Dr. Francis Collins. He is currently the Donald O. Schnuck Family Professor in Neurology. Dr. Gutmann’s laboratory is focused on understanding the genomic, molecular, and cellular basis for nervous system problems affecting children and adults with NF.
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Honorary Committee