Archives: Read More » Tell Us Your Story: Shaun and Tyler Neppl A story of courage, community, and the powerful bond between a father and son navigating life with NF1. For Shaun Neppl, his son Tyler’s NF1 … Read More » Tell Us Your Story: Danielle Grover Finding Hope, Community, and Purpose on an NF Journey Parenting a child with NF often means learning an entirely new language overnight, navigating specialist visits, …