Tell Us Your Story: Valeria McConnell and Jamal’s Helping Hands

Carrying Jamal’s Legacy Forward Through Helping Hands Every family living with neurofibromatosis has a moment when everything changes. For Valeria McConnell, that moment came into …

NF Awareness in Action Event Recap

Building Awareness Through Community: NFX’s Inaugural NF Event On May 17, 2026, in honor of World NF1 Awareness Day, NFX hosted its inaugural NF Awareness …

NFX’s First Ever Community Outing

Strike Out NF: Roaring Start to NF Awareness Month On May 1st NFX kicked off NF Awareness Month by bring together members of Metro-Detroit’s’ NF …